Tennessee Warrior: Knox, age 6

funny, happy, busy

 
 

Video by Tate Kennedy

Congratulations, Knox!

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“Cystic fibrosis doesn’t change how we live…it just takes us a few more steps to get where we’re going each day,” said Iris, mother to Knox, age 6. Knox’s diagnosis came at six weeks old - a surprise to Iris and dad, Stephen. With the help of their care team at East Tennessee Children’s Hospital, the family got up-to-speed quickly and made CF treatment a part of their lives.

Knox and his family (sister Elsie, Mom and Dad) are busy and always on the go. Knox has been homeschooled to optimize his compliance to treatment and feeding schedules. The family runs attractions near the Smoky Mountains and Knox loves the adventure and activity that surrounds him every day! According to Iris, “Knox has more energy than any kid at his age!”

The family looks forward to having Knox be confident participating in all the sports he’s interested in as he gets older. With an AffloVest, they are assured that he can do his treatment anywhere and they won’t have to avoid schedules that could conflict with treatment time. He not only loves playing baseball and golf, but he’s a fan of teams in any sport.

It’s a good thing Knox is a team player, because he’s got a huge crew of family, friends and community that are Team Knox!

knoxs Legacy Day - play day in gatlinburg

Since Knox first received his AffloVest in December, the Legacy Foundation, AffloVest, American Airlines and the Joyce Family Foundation made a day of play possible for Colton and Knox in the Spring! We spent a beautiful day in Gatlinburg playing on the ropes course, laser tag, mini golf and bumper cars!

After a few hours of busy play, we got to see more of Gatlinburg and we were invited in to the Ole Smoky Candy Kitchen. Colton and Knox helped make taffy and were able to taste candy right as it was prepared. We visited other shops during our visit including Ole Smoky Distillery to visit close family friends.

The Ramsey family felt especially blessed to have met the Joyce family with our team. They not only got to spend time with the parents of an adult living with cystic fibrosis, but they got to meet Meghan, a wife and mother with CF, who inspired hope in this sweet young family.